Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study.
Zanab MianTerrence CalistroKimberly RapozaShari Salzhauer BerkowitzTamar B RubinsteinHeather M WaltersB Anne EberhardKathleen Kenney-RileyJoyce S Hui-YuenPublished in: The Journal of pediatrics (2024)
Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in patients with high activity, nephritis, and/or taking corticosteroids or mycophenolate mofetil.
Keyphrases
- disease activity
- systemic lupus erythematosus
- rheumatoid arthritis
- rheumatoid arthritis patients
- ankylosing spondylitis
- young adults
- juvenile idiopathic arthritis
- end stage renal disease
- ejection fraction
- newly diagnosed
- chronic kidney disease
- peritoneal dialysis
- healthcare
- mental health
- primary care
- prognostic factors
- physical activity
- type diabetes
- metabolic syndrome
- skeletal muscle
- insulin resistance
- glycemic control