Development of a Patient Reported Measure of Experimental Transplants with HIV and Ethics in the United States (PROMETHEUS).
Shanti SeamanDiane BrownAnn EnoSile YuAllan B MassieAaron A R TobianChristine M DurandDorry L SegevAlbert W WuJeremy SugarmanPublished in: Journal of patient-reported outcomes (2021)
We developed PROMETHEUS to systematically capture patient-reported experiences with this novel experimental transplantation program, nested it in an actual clinical trial, and obtained preliminary data regarding its performance.
Keyphrases
- patient reported
- clinical trial
- big data
- antiretroviral therapy
- hiv positive
- hiv infected
- hiv testing
- human immunodeficiency virus
- public health
- hepatitis c virus
- mental health
- electronic health record
- quality improvement
- hiv aids
- men who have sex with men
- open label
- study protocol
- machine learning
- randomized controlled trial
- stem cells
- artificial intelligence
- cell therapy
- deep learning
- data analysis
- phase iii
- case control