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Willingness to Participate in Health Information Networks with Diverse Data Use: Evaluating Public Perspectives.

Jodyn E PlattMinakshi RajAyşe G BüyüktürM Grace TrinidadOlufunmilayo OlopadeMark S AckermanSharon Kardia
Published in: EGEMS (Washington, DC) (2019)
Our results suggest willingness to be a part of multi-user data networks is low, but that attention to governance may increase willingness. Building trust to enable acceptance of multi-use data networks will require a commitment to aligning data access practices with the expectations of the people whose data is being used.
Keyphrases
  • electronic health record
  • health information
  • big data
  • healthcare
  • primary care
  • social media
  • emergency department
  • mental health
  • machine learning
  • artificial intelligence
  • global health