Willingness to Participate in Health Information Networks with Diverse Data Use: Evaluating Public Perspectives.
Jodyn E PlattMinakshi RajAyşe G BüyüktürM Grace TrinidadOlufunmilayo OlopadeMark S AckermanSharon KardiaPublished in: EGEMS (Washington, DC) (2019)
Our results suggest willingness to be a part of multi-user data networks is low, but that attention to governance may increase willingness. Building trust to enable acceptance of multi-use data networks will require a commitment to aligning data access practices with the expectations of the people whose data is being used.