Paediatric Rheumatology Fails to Meet Current Benchmarks, a Call for Health Equity for Children Living with Juvenile Idiopathic Arthritis, Using Digital Health Technologies.
Sonia ButlerDean SculleyDerek Santos SantosXavier Gironès GarciaDavinder Singh-GrewalAndrea CodaPublished in: Current rheumatology reports (2024)
Despite the well-intended legislative changes to increase paediatric research, and the major advancements seen in molecular medicine over the last 30 years, globally, paediatric rheumatology services are still failing to meet the current benchmarks of best practice. Provoking questions on how the longstanding health care disparities of poor access and delayed treatment for children living with JIA can be improved, to improve healthcare outcomes. Globally, paediatric rheumatology services are failing to meet the current benchmarks of best practice. Raising awareness of the barriers hindering JIA management is the first step in reducing the current health inequalities experienced by children living with JIA. Action must be taken now, to train and well-equip the paediatric rheumatology interdisciplinary workforce. We propose, a resource-efficient way to improve the quality of care provided could be achieved by embedding digital health into clinical practice, to create an integrative care model between the children, general practice and the paediatric rheumatology team. To improve fragmented service delivery and the coordination of interdisciplinary care, across the healthcare system.
Keyphrases
- healthcare
- juvenile idiopathic arthritis
- intensive care unit
- emergency department
- disease activity
- young adults
- public health
- general practice
- primary care
- quality improvement
- health information
- affordable care act
- clinical practice
- palliative care
- metabolic syndrome
- high resolution
- mass spectrometry
- pain management
- global health