Mental health professional perspectives on health data sharing: Mixed methods study.
Adela GrandoJulia IvanovaMegan HiestandHiral SoniAnita MurckoMichael SaksDavid KaufmanMary Jo WhitfieldChristy DyeDarwyn ChernJonathan MaupinPublished in: Health informatics journal (2020)
This study explores behavioral health professionals' perceptions of granular data. Semi-structured in-person interviews of 20 health professionals were conducted at two different sites. Qualitative and quantitative analysis was performed. While most health professionals agreed that patients should control who accesses their personal medical record (70%), there are certain types of health information that should never be restricted (65%). Emergent themes, including perceived reasons that patients might share or withhold certain types of health information (65%), care coordination (12%), patient comprehension (11%), stigma (5%), trust (3%), sociocultural understanding (3%), and dissatisfaction with consent processes (1%), are explored. The impact of care role (prescriber or non-prescriber) on data-sharing perception is explored as well. This study informs the discussion on developing technology that helps balance provider and patient data-sharing and access needs.
Keyphrases
- health information
- healthcare
- social media
- mental health
- end stage renal disease
- electronic health record
- ejection fraction
- newly diagnosed
- big data
- primary care
- prognostic factors
- palliative care
- peritoneal dialysis
- public health
- risk assessment
- social support
- hiv aids
- physical activity
- depressive symptoms
- quality improvement
- machine learning
- systematic review
- artificial intelligence
- study protocol