Adaptive behavior assessed by Vineland-3 as comprehensive outcome measure in vanishing white matter.
Daphne H SchoenmakersIrene van BeelenMarije M C VoermansDenise PerikMenno D StellingwerffNicole I WolfJohannes BerkhofMarjo S van der KnaapPublished in: Annals of clinical and translational neurology (2024)
The Vineland-3 appears to be a useful outcome measure to explore and quantify complex cognitive, behavioral, and psychiatric impairments affecting daily functioning in vanishing white matter. Further research should address the longitudinal evaluation of this tool and its additional value to standard neuropsychological and clinical examination.