Registrations of Patients with Renal Cell Carcinoma in the Nationwide Danish Renal Cancer Database versus the Danish Cancer Registry: Data Quality, Completeness and Survival (DaRenCa Study-3).
Bolette DanckertTrine Allerslev HorsbølOle AndersenSusanne Oksbjerg DaltonJane ChristensenMargit RastedAstrid PetersenMette NørgaardNessn H AzawiLars LundFrede DonskovPublished in: Clinical epidemiology (2020)
DaRenCaData had high and increasing completeness and high PPV, establishing it as a high-quality research database. Observed in both registries, renal cell carcinoma mortality declined over time; patients only registered in DCR or DaRenCaData had poorer outcomes. This study points to the importance of assessing the inclusion criteria when interpreting registry-based studies.
Keyphrases
- renal cell carcinoma
- papillary thyroid
- end stage renal disease
- chronic kidney disease
- newly diagnosed
- cardiovascular events
- squamous cell carcinoma
- emergency department
- cardiovascular disease
- metabolic syndrome
- adipose tissue
- electronic health record
- young adults
- cross sectional
- machine learning
- patient reported outcomes
- lymph node metastasis
- insulin resistance
- free survival