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Health-related quality of life and health status in adolescent and adult people with haemophilia A without factor VIII inhibitors-A non-interventional study.

Johannes OldenburgHuyen TranFlora PeyvandiRamiro NúñezPeter TraskSammy ChebonJohnny N MahlanguMichaela LehleVictor Jimenez YusteSylvia von Mackensen
Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2021)
Adult and adolescent PwHA without FVIII inhibitors had HRQoL impairments regardless of whether they were treated with episodic or prophylactic standard care with FVIII.
Keyphrases
  • young adults
  • childhood cancer
  • mental health
  • healthcare
  • palliative care
  • quality improvement
  • pain management