Sylvia von Mackensen (S von Mackensen)

ORCID

Publication Activity (10 Years)

Years Active: 2017-2023
Publications (10 Years): 24

Top Venues

Haemophilia : the official journal of the World Federation of Hemophilia

Expert review of hematology

European journal of haematology

Blood

University Medical Centre Hamburg-Eppendorf

This page only lists publications with an associated author ORCID identifier.

Affiliation History

University Medical Centre Hamburg-Eppendorf

Germany

Senior Scientist :: Department of Medical Psychology

Publications

Sylvia von Mackensen, Maria E Santaella, Cynthia D Nichols, Kate Khair, Angela Y Lambing, Michelle L Witkop
Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians. Expert review of hematology 16 (12) (2023)
Sylvia von Mackensen, Maria E Santaella, Cynthia D Nichols, Kate Khair, Angela Y Lambing, Michelle L Witkop
Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians. Expert review of hematology 16 (12) (2023)
Sylvia von Mackensen, Maria E Santaella, Cynthia D Nichols, Kate Khair, Angela Y Lambing, Michelle L Witkop
Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians. Expert review of hematology (2023)
Sylvia von Mackensen, Maria E Santaella, Cynthia D Nichols, Kate Khair, Angela Y Lambing, Michelle L Witkop
Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians. Expert review of hematology 16 (12) (2023)
Sylvia von Mackensen, Maria E Santaella, Cynthia D Nichols, Kate Khair, Angela Y Lambing, Michelle L Witkop
Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians. Expert review of hematology 16 (12) (2023)
Cristina Santoro, Beng Fuh, Phu Quoc Le, Philip Maes, Rubén Berrueco, Maria-Eva Mingot-Castellano, Sylvia von Mackensen, Claudia Tueckmantel, Jose Francisco Cabre-Marquez, Michael Wang
Efficacy and safety in patients with haemophilia A switching to octocog alfa (BAY 81-8973): Final results of the global real-world study, TAURUS. European journal of haematology 110 (1) (2022)
Masoume Rambod, Nilofar Pasyar, Fatemeh Irannejad Parizi, Mitra Edraki, Kate Khair, Sylvia von Mackensen
The effect of a virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies. Haemophilia : the official journal of the World Federation of Hemophilia (2022)
Johannes Oldenburg, Huyen Tran, Flora Peyvandi, Ramiro Núñez, Peter Trask, Sammy Chebon, Johnny N Mahlangu, Michaela Lehle, Victor Jimenez Yuste, Sylvia von Mackensen
Health-related quality of life and health status in adolescent and adult people with haemophilia A without factor VIII inhibitors-A non-interventional study. Haemophilia : the official journal of the World Federation of Hemophilia 27 (3) (2021)
Mark W Skinner, Claude G Negrier, Ido Paz-Priel, Sammy Chebon, Victor Jimenez Yuste, Michael U Callaghan, Michaela Lehle, Markus Niggli, Johnny N Mahlangu, Amy D Shapiro, Midori Shima, Avrita Campinha-Bacote, Gallia G Levy, Johannes Oldenburg, Sylvia von Mackensen, Steven W Pipe
The effect of emicizumab prophylaxis on long-term, self-reported physical health in persons with haemophilia A without factor VIII inhibitors in the HAVEN 3 and HAVEN 4 studies. Haemophilia : the official journal of the World Federation of Hemophilia 27 (5) (2021)
Alessandro Casini, Sylvia von Mackensen, Cristina Santoro, Claudia Djambas Khayat, Meriem Belhani, Cecil Ross, Akbar Dorgalaleh, Arshi Naz, Ekrem Ünal, Magy Abdelwahab, Elise Dupuis Lozeron, Nathalie Trillot, Sophie Susen, Flora Peyvandi, Philippe De Moerloose, null null
Clinical phenotype, fibrinogen supplementation, and health-related quality of life in patients with afibrinogenemia. Blood 137 (22) (2021)
Claudia Djambas Khayat, Emna Gouider, Sylvia von Mackensen, Rezan Abdul Kadir
Heavy menstrual bleeding in women with inherited bleeding disorders. Haemophilia : the official journal of the World Federation of Hemophilia (2021)
Catherine Marie Lambert, N'Dogomo Meité, Ibrahima Sanogo, Sébastien Lobet, Sylvia von Mackensen, Cedric Hermans
Cross-cultural adaptation and validation of Haem-A-QoL in Côte d'Ivoire. Haemophilia : the official journal of the World Federation of Hemophilia 26 (3) (2020)
Sylvia von Mackensen, Olivier Catalani, Elina Asikanius, Ido Paz-Priel, Michaela Lehle, Peter Trask
Determining meaningful health-related quality-of-life improvement in persons with haemophilia A using the Haemophilia Quality of Life Questionnaire for Adults (Haem-A-QoL). Haemophilia : the official journal of the World Federation of Hemophilia 26 (6) (2020)
Sylvia von Mackensen, Susan Halimeh, Manuela Siebert, Cornelia Wermes, Wolf Hassenpflug, Katharina Holstein, Martin Olivieri
Impact of COVID-19 pandemic on mental health of patients with inherited bleeding disorders in Germany. Haemophilia : the official journal of the World Federation of Hemophilia 26 (6) (2020)
Charles R M Hay, Midori Shima, Michael P Makris, Victor Jiménez-Yuste, Johannes Oldenburg, Kathelijn Fischer, Alfonso Iorio, Mark W Skinner, Elena Santagostino, Sylvia von Mackensen, Craig M Kessler
Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company. Haemophilia : the official journal of the World Federation of Hemophilia 26 (6) (2020)
Kate Khair, Anna Klukowska, Linda Myrin Westesson, Kaan Kavakli, Carmen Escuriola, Nanda Uitslager, Cristina Santoro, Mike Holland, Sylvia von Mackensen
The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study). Haemophilia : the official journal of the World Federation of Hemophilia 25 (3) (2019)
Johnny N Mahlangu, Johannes Oldenburg, Michael U Callaghan, Midori Shima, Maria Elisa Mancuso, Peter Trask, Michael Recht, Claudia Garcia, Renchi Yang, Michaela Lehle, Harrison Macharia, Elina Asikanius, Gallia G Levy, Rebecca Kruse-Jarres, Sylvia von Mackensen
Health-related quality of life and health status in persons with haemophilia A with inhibitors: A prospective, multicentre, non-interventional study (NIS). Haemophilia : the official journal of the World Federation of Hemophilia 25 (3) (2019)
Sylvia von Mackensen, Linda Myrin Westesson, Kaan Kavakli, Anna Klukowska, Carmen Escuriola, Nanda Uitslager, Cristina Santoro, Mike Holland, Kate Khair
The impact of psychosocial determinants on caregivers' burden of children with haemophilia (results of the BBC study). Haemophilia : the official journal of the World Federation of Hemophilia 25 (3) (2019)
Sylvia von Mackensen, Thomas Hilberg, Leonard A Valentino, K Kurnik, Kate Khair
Validation of the Haemophilia & Exercise Project-Test-Questionnaire (HEP-Test-Q)-An instrument for the assessment of subjective physical functioning in children with haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 24 (6) (2018)
Sylvia von Mackensen, Jinesh Shah, Wilfried Seifert, Gili Kenet
Health-related quality of life in paediatric haemophilia B patients treated with rIX-FP. Haemophilia : the official journal of the World Federation of Hemophilia 25 (1) (2018)
Albert Farrugia, A Gringeri, Sylvia von Mackensen
The multiple benefits of sport in haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 24 (3) (2018)
Johannes Oldenburg, Johnny N Mahlangu, Willem Bujan, Peter Trask, Michael U Callaghan, Guy Aaron Young, Elina Asikanius, Flora Peyvandi, Elena Santagostino, Rebecca Kruse-Jarres, Claude Negrier, Craig Kessler, Jin Xu, Jerzy Windyga, Midori Shima, Sylvia von Mackensen
The effect of emicizumab prophylaxis on health-related outcomes in persons with haemophilia A with inhibitors: HAVEN 1 Study. Haemophilia : the official journal of the World Federation of Hemophilia 25 (1) (2018)
Sylvia von Mackensen, W Kalnins, J Krucker, J Weiss, W Miesbach, M Albisetti, I Pabinger, J Oldenburg
Haemophilia patients' unmet needs and their expectations of the new extended half-life factor concentrates. Haemophilia : the official journal of the World Federation of Hemophilia 23 (4) (2017)
Kate Khair, M Holland, M Bladen, A Griffioen, P McLaughlin, Sylvia von Mackensen, null null
Study of physical function in adolescents with haemophilia: The SO-FIT study. Haemophilia : the official journal of the World Federation of Hemophilia 23 (6) (2017)

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Publication Activity (10 Years)

Top Topics

Top Venues

Sylvia von Mackensen (S von Mackensen)