Decreased quality of life and societal impact of cryopyrin-associated periodic syndrome treated with canakinumab: a questionnaire based cohort study.

Catharina M Mulders-MandersTim A KantersPaul L A van DaeleEsther HoppenreijsG Elizabeth LeggerJan A M van LaarAnna SimonLeona Hakkaart-van Roijen

Published in: Orphanet journal of rare diseases (2018)

QoL during treatment is lower than in the general Dutch population. CAPS leads to productivity loss and absenteeism from school, and impacts the quality of life in informal caregivers.

Keyphrases

physical activity
climate change
palliative care
mental health
cross sectional
case report
psychometric properties
newly diagnosed
high school