Protocol for the EARCO Registry: a pan-European observational study in patients with α1-antitrypsin deficiency.
Timm GreulichAlan AltrajaMiriam BarrechegurenRobert BalsJan ChlumskyJoanna Chorostowska-WynimkoChristian F ClarenbachLuciano CordaAngelo Guido CorsicoIlaria FerrarottiCristina EsquinasCaroline GouderAna HećimovićAleksandra IlicYavor IvanovSabina JanciauskieneWim JanssensMalcolm KohlerAlvils KramsBeatriz Lara GallegoRavi MahadevaGerry McElvaneyJean-François MornexKaren O'HaraDavid ParrEava PiitulainenKarin Schmid-ScherzerNiels SeersholmRobert A StockleyJan StolkMaria SucenaHanan TanashAlice Margaret TurnerRuxandra UlmeanuMarion WilkensArzu YorgancioğluAna ZaharieMarc MiravitllesPublished in: ERJ open research (2020)
The EARCO Registry aims to understand the natural history and prognosis of AATD better with the goal to create and validate prognostic tools to support medical decision-making.