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Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome.

Mala PandeSusan PetersonPatrick M Lynch
Published in: Journal of medical genetics (2021)
FamilyCONNECT tool's content and features were well received among patients with LS as well as providers. The tool could be a viable alternative to increase family outreach among patients with LS. Future efforts will focus on refining FamilyCONNECT and assessing its uptake and utilisation by patients with LS.
Keyphrases
  • case report
  • health information
  • randomized controlled trial
  • colorectal cancer screening
  • social media
  • current status
  • genome wide
  • quality improvement
  • gene expression
  • dna methylation