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Scientific Versus Experiential Evidence: Discourse Analysis of the Chronic Cerebrospinal Venous Insufficiency Debate in a Multiple Sclerosis Forum.

Janka KoschackLara WeibezahlTim FriedeWolfgang HimmelPhilip MakedonskiJens Grabowski
Published in: Journal of medical Internet research (2015)
By critical discourse analysis of the CCSVI discussion in a patient online forum, we reconstruct a lay discourse about the evidentiary value of knowledge. We detected evidence criteria in this lay discourse that are different from those in the expert discourse. But we should be cautious to interpret this dissociation as a sign of an intellectual incapability to understand scientific evidence or a naïve trust in experiential knowledge. Instead, it might be an indication of cognitive dissonance reduction to protect oneself against contradictory information.
Keyphrases
  • multiple sclerosis
  • healthcare
  • health information
  • social media
  • white matter
  • clinical practice