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Co-development of the ENVISAGE-Families programme for parents of children with disabilities: Reflections on a parent-researcher partnership.

Kinga PozniakAndrea CrossRose BabicVicki CavalierosRachel MartensPeter L RosenbaumChristine ImmsMonika Novak-PavlicAbha BalramDebra HughesBridget O'ConnorLaura Miller
Published in: Australian occupational therapy journal (2022)
Patient and family engagement in research is a rapidly growing area of scholarship with new knowledge and tools added every year. As our team embarks on new collaborative studies, we incorporate this knowledge as well as the practical experience we gain from working together.
Keyphrases
  • healthcare
  • quality improvement
  • young adults
  • case report
  • social media
  • palliative care
  • study protocol
  • randomized controlled trial
  • case control
  • double blind