Evidence of a disability paradox in patient-reported outcomes in haemophilia.
Jamie O'HaraAntony P MartinDiane NugentMichelle L WitkopTyler W BucknerMark W SkinnerBrian O'MahonyBrendan MulhernGeorge MorganNanxin LiEileen K SawyerPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2021)
Our findings indicated the presence of a disability paradox among patients with haemophilia, who reported higher health states than the general population, suggesting the impact of haemophilia may be underestimated if general population value sets are used.