Mark W Skinner (Mark Skinner, M W Skinner)

ORCID

Publication Activity (10 Years)

Years Active: 2018-2024
Publications (10 Years): 36

Top Venues

Haemophilia : the official journal of the World Federation of Hemophilia

American journal of medical genetics. Part C, Seminars in medical genetics

Expert review of hematology

Patient preference and adherence

McMaster University

This page only lists publications with an associated author ORCID identifier.

Affiliation History

McMaster University Apr 01 2018

Canada

Assistant Professor (part-time) :: Department of Health Research Methods, Evidence and Impact

Publications

Randall G Curtis, Joanne Wu, Alfonso Iorio, Neil Frick, Michael Nichol, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Alexandra Kucher, Elizabeth Clearfield, Mark W Skinner, Federico Germini
Test-retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) study. Haemophilia : the official journal of the World Federation of Hemophilia 30 (3) (2024)
Randall G Curtis, Joanne Wu, Alfonso Iorio, Neil Frick, Michael Nichol, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Alexandra Kucher, Elizabeth Clearfield, Mark W Skinner, Federico Germini
Test-retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) study. Haemophilia : the official journal of the World Federation of Hemophilia (2024)
Elizabeth Clearfield, Hsing-Yuan Chang, Ellen M Janssen, Tabassum Majid, Donna A Messner, Donna Coffin, Mohit Jain, Paul E Monahan, Leonard A Valentino, Michelle Witkop, Mark W Skinner
Development of the coreHEM mental health patient-reported outcome measure - A novel mental health outlook measure for people with haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia (2024)
Amy M Gaviglio, Mark W Skinner, Lily J Lou, Richard S Finkel, Erika F Augustine, Aaron J Goldenberg
Gene-targeted therapies: Towards equitable development, diagnosis, and access. American journal of medical genetics. Part C, Seminars in medical genetics (2023)
Julie Lekstrom-Himes, Erika F Augustine, Amy M Brower, Thomas Defay, Richard S Finkel, Amy L McGuire, Mark W Skinner, Timothy W Yu
Data sharing to advance gene-targeted therapies in rare diseases. American journal of medical genetics. Part C, Seminars in medical genetics (2023)
Vanessa R Byams, Judith R Baker, Cindy Bailey, Nathan T Connell, Melissa S Creary, Randall G Curtis, Alexis Dinno, Christine J Guelcher, Michelle Kim, Roshni Daniel Kulkarni, Susan S Lattimore, Keri L Norris, Lucy Ramirez, Mark W Skinner, Susan Symington, Patricia Tobase, Esmeralda Vázquez, Beth Boulden Warren, Emily Wheat, Tyler W Buckner
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities in health services; diversity, equity, and inclusion; and implementation science. Expert review of hematology 16 (sup1) (2023)
Julie Lekstrom-Himes, Erika F Augustine, Amy M Brower, Thomas Defay, Richard S Finkel, Amy L McGuire, Mark W Skinner, Timothy W Yu
Data sharing to advance gene-targeted therapies in rare diseases. American journal of medical genetics. Part C, Seminars in medical genetics (2023)
Julie Lekstrom-Himes, Erika F Augustine, Amy M Brower, Thomas Defay, Richard S Finkel, Amy L McGuire, Mark W Skinner, Timothy W Yu
Data sharing to advance gene-targeted therapies in rare diseases. American journal of medical genetics. Part C, Seminars in medical genetics 193 (1) (2023)
Amy M Gaviglio, Mark W Skinner, Lily J Lou, Richard S Finkel, Erika F Augustine, Aaron J Goldenberg
Gene-targeted therapies: Towards equitable development, diagnosis, and access. American journal of medical genetics. Part C, Seminars in medical genetics (2023)
Charles R M Hay, Michael P Makris, Midori Shima, Azusa Nagao, Víctor Jiménez-Yuste, Mark W Skinner, Craig M Kessler, Sylvia von Mackensen
Association of patient, treatment and disease characteristics with patient-reported outcomes: Results of the ECHO Registry. Haemophilia : the official journal of the World Federation of Hemophilia (2023)
Amy M Gaviglio, Mark W Skinner, Lily J Lou, Richard S Finkel, Erika F Augustine, Aaron J Goldenberg
Gene-targeted therapies: Towards equitable development, diagnosis, and access. American journal of medical genetics. Part C, Seminars in medical genetics 193 (1) (2023)
Julie Lekstrom-Himes, Erika F Augustine, Amy M Brower, Thomas Defay, Richard S Finkel, Amy L McGuire, Mark W Skinner, Timothy W Yu
Data sharing to advance gene-targeted therapies in rare diseases. American journal of medical genetics. Part C, Seminars in medical genetics (2023)
Tom Burke, Aubri M Kottek, Pratima Chowdary, Randall G Curtis, Kate Khair, Michael A Laffan, Paul Mclaughlin, Declan Noone, Brian O'Mahony, K John Pasi, Mark W Skinner, Jamie O'Hara
Humanistic burden of problem joints for children and adults with haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 29 (2) (2022)
Tom Burke, Aubri M Kottek, Pratima Chowdary, Randall G Curtis, Kate Khair, Michael A Laffan, Paul Mclaughlin, Declan Noone, Brian O'Mahony, K John Pasi, Mark W Skinner, Jamie O'Hara
Humanistic burden of problem joints for children and adults with haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 29 (2) (2022)
Tom Burke, Aubri M Kottek, Pratima Chowdary, Randall G Curtis, Kate Khair, Michael A Laffan, Paul Mclaughlin, Declan Noone, Brian O'Mahony, K John Pasi, Mark W Skinner, Jamie O'Hara
Humanistic burden of problem joints for children and adults with haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 29 (2) (2022)
Michael Wang, Claude Negrier, Frank Driessler, Clifford Goodman, Mark W Skinner
The Hemophilia Gene Therapy Patient Journey: Questions and Answers for Shared Decision-Making. Patient preference and adherence 16 (2022)
Mark W Skinner, Gerry Dolan, Hermann Eichler, Brian O'Mahony, null null
A preliminary application of a haemophilia value framework to emerging therapies in haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia (2022)
Federico Germini, Victoria Borg Debono, David Page, Victoria Zuk, Alexandra Kucher, Chris Cotoi, Nicholas Hobson, Michael Sevestre, Mark W Skinner, Alfonso Iorio, null null
User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods Study. JMIR human factors 9 (1) (2022)
Tom Burke, Aubri M Kottek, Pratima Chowdary, Randall G Curtis, Kate Khair, Michael A Laffan, Paul Mclaughlin, Declan Noone, Brian O'Mahony, K John Pasi, Mark W Skinner, Jamie O'Hara
Humanistic burden of problem joints for children and adults with haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia (2022)
Alfonso Iorio, Christoph Königs, Mark T Reding, Dawn Rotellini, Mark W Skinner, Maria Elisa Mancuso, Erik Berntorp
Prophylaxis use of clotting factor replacement products in people with non-severe haemophilia: A review of the literature. Haemophilia : the official journal of the World Federation of Hemophilia (2022)
Tom Burke, Anum Shaikh, Talaha M Ali, Nanxin Li, Randall G Curtis, Daniel-Anibal Garcia Diego, Michael Recht, Thomas Sannie, Mark W Skinner, Jamie O'Hara
Association of factor expression levels with health-related quality of life and direct medical costs for people with haemophilia B. Journal of medical economics 25 (1) (2022)
Barbara A Konkle, Glenn F Pierce, Donna Coffin, Mayss Naccache, R Cary Clark, Lindsey A George, Alfonso Iorio, Brian O'Mahony, Steven W Pipe, Mark W Skinner, Crystal Watson, Flora Peyvandi, Johnny N Mahlangu, null null
Core data set on safety, efficacy, and durability of hemophilia gene therapy for a global registry: Communication from the SSC of the ISTH. Journal of thrombosis and haemostasis : JTH 18 (11) (2021)
Jamie O'Hara, Antony P Martin, Diane Nugent, Michelle L Witkop, Tyler W Buckner, Mark W Skinner, Brian O'Mahony, Brendan Mulhern, George Morgan, Nanxin Li, Eileen K Sawyer
Evidence of a disability paradox in patient-reported outcomes in haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 27 (2) (2021)
Christopher Walsh, Lisa Boggio, Lanette Brown-Jones, Rachel Miller, Sarah Hawk, Brittany Savage, Kerry Hansen, Don Molter, Kim Baumann, Spencer Dunn, Mark W Skinner, Kimberly Haugstad, Stormy Johnson, Tammy Davenport, Margaret Bradbury, Michelle L Witkop, Hossam Saad, David L Cooper
Identified unmet needs and proposed solutions in mild-to-moderate haemophilia: A summary of opinions from a roundtable of haemophilia experts. Haemophilia : the official journal of the World Federation of Hemophilia (2021)
Mark W Skinner, Claude G Negrier, Ido Paz-Priel, Sammy Chebon, Victor Jimenez Yuste, Michael U Callaghan, Michaela Lehle, Markus Niggli, Johnny N Mahlangu, Amy D Shapiro, Midori Shima, Avrita Campinha-Bacote, Gallia G Levy, Johannes Oldenburg, Sylvia von Mackensen, Steven W Pipe
The effect of emicizumab prophylaxis on long-term, self-reported physical health in persons with haemophilia A without factor VIII inhibitors in the HAVEN 3 and HAVEN 4 studies. Haemophilia : the official journal of the World Federation of Hemophilia 27 (5) (2021)
Radoslaw Kaczmarek, Magdy El Ekiaby, Daniel P Hart, Cedric Hermans, Michael P Makris, Declan Noone, Brian William O'Mahony, David Page, Flora Peyvandi, Steven W Pipe, Thomas Sannié, Uwe Schlenkrich, Mark W Skinner, Alok Srivastava, Amanda Bok, Glenn F Pierce, null null
Vaccination against COVID-19: Rationale, modalities and precautions for patients with haemophilia and other inherited bleeding disorders. Haemophilia : the official journal of the World Federation of Hemophilia 27 (4) (2021)
Michelle Witkop, George Morgan, Jamie O'Hara, Michael Recht, Tyler W Buckner, Diane Nugent, Randall G Curtis, Brian O'Mahony, Mark W Skinner, Brendan Mulhern, Matthew Cawson, Talaha M Ali, Eileen K Sawyer, Nanxin Li
Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment. Haemophilia : the official journal of the World Federation of Hemophilia 27 (5) (2021)
Wolfgang Miesbach, K John Pasi, Steven W Pipe, Cedric Hermans, Brian O'Mahony, Christine J Guelcher, Bruno Steiner, Mark W Skinner
Evolution of haemophilia integrated care in the era of gene therapy: Treatment centre's readiness in United States and EU. Haemophilia : the official journal of the World Federation of Hemophilia 27 (4) (2021)
Jeffrey S Stonebraker, Paula H B Bolton-Maggs, Mark Brooker, Bruce Evatt, Alfonso Iorio, Michael P Makris, Brian O'Mahony, Mark W Skinner, Donna Coffin, Glenn F Pierce, Ellia Tootoonchian
The World Federation of Hemophilia Annual Global Survey 1999-2018. Haemophilia : the official journal of the World Federation of Hemophilia 26 (4) (2020)
Leonard A Valentino, Mark W Skinner, Steven W Pipe
The role of telemedicine in the delivery of health care in the COVID-19 pandemic. Haemophilia : the official journal of the World Federation of Hemophilia 26 (5) (2020)
Charles R M Hay, Midori Shima, Michael P Makris, Victor Jiménez-Yuste, Johannes Oldenburg, Kathelijn Fischer, Alfonso Iorio, Mark W Skinner, Elena Santagostino, Sylvia von Mackensen, Craig M Kessler
Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company. Haemophilia : the official journal of the World Federation of Hemophilia 26 (6) (2020)
Chatree Chai-Adisaksopha, Declan Noone, Randall G Curtis, Neil Frick, Michael B Nichol, Federico Germini, Brian O'Mahony, David Page, Jeffrey S Stonebraker, Mark W Skinner, Alfonso Iorio
Non-severe haemophilia: Is it benign? - Insights from the PROBE study. Haemophilia : the official journal of the World Federation of Hemophilia (2020)
Mark W Skinner, Diane Nugent, Pam Wilton, Brian O'Mahony, Gerry Dolan, Jamie O'Hara, Erik Berntorp
Achieving the unimaginable: Health equity in haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 26 (1) (2019)
Chatree Chai-Adisaksopha, Mark W Skinner, Randall Curtis, Neil Frick, Michael B Nichol, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Lehana Thabane, Mark A Crowther, Alfonso Iorio
Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study. Haemophilia : the official journal of the World Federation of Hemophilia 25 (3) (2019)
Chatree Chai-Adisaksopha, Mark W Skinner, Randall Curtis, Neil Frick, Michael B Nichol, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Lehana Thabane, Mark A Crowther, Alfonso Iorio
Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains. Haemophilia : the official journal of the World Federation of Hemophilia 25 (1) (2018)
Mark W Skinner, C Chai-Adisaksopha, R Curtis, N Frick, M Nichol, D Noone, B O'Mahony, D Page, J S Stonebraker, A Iorio
The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia. Pilot and feasibility studies 4 (2018)

Mark W Skinner.css-eqlu8i{font-size:small;padding-left:4px;} (Mark Skinner, M W Skinner)

Publication Activity (10 Years)

Top Topics

Top Venues

Mark W Skinner (Mark Skinner, M W Skinner)