Patient-reported outcome measures in pediatric solid organ transplantation: Exploring stakeholder perspectives on clinical implementation through qualitative description.

Samantha J AnthonyKatarina YoungSarah J Pol Enid K SelkirkTom Blydt-HansenSuzanne BoucherAviva GoldbergLorraine HamiwkaLotte HavermanJoanna MitchellSimon UrschelMaria SantanaJennifer StinsonKatie SutherlandLori J West

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2021)

This study contributes to current research that supports the use of PROMs in clinical pediatric care and guides their effective implementation into practice. Future directions include the development, usability testing, and evaluation of a proposed electronic PROM platform that will inform future research initiatives.

Keyphrases

patient reported outcomes
quality improvement
healthcare
primary care
current status
systematic review
stem cells
high throughput
electronic health record
health information
bone marrow
chronic pain
health insurance