Lotte Haverman

Publication Activity (10 Years)

Years Active: 2019-2024
Publications (10 Years): 28

Top Topics

Patient Reported Outcomes

Psychometric Properties

Clinical Practice

Palliative Care

Top Venues

Haemophilia : the official journal of the World Federation of Hemophilia

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Journal of patient-reported outcomes

Psychological assessment

This page only lists publications with an associated author ORCID identifier.

Publications

Martijn R Brands, Lotte Haverman, Jelmer J Muis, Mariëtte H E Driessens, Stephan Meijer, Felix J M van der Meer, Marianne de Jong, Johanna van der Bom, Marjon H Cnossen, Karin C J Fijnvandraat, Samantha C Gouw
Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study. JMIR human factors 11 (2024)
Tessa C M van Gastel, Lorynn Teela, Evelien P Mauser-Bunschoten, Michiel Coppens, Marjolein Peters, Karin C J Fijnvandraat, Lotte Haverman, Samantha C Gouw
Sexual functioning in men with haemophilia: Data from the haemophilia in the Netherlands-6 study. Haemophilia : the official journal of the World Federation of Hemophilia (2024)
Lorynn Teela, Lotte Haverman, Christina Burgess, Petra Buckova, Karen Vandenabeele, Gaby Golan, Gloria Rooney, Ana Torres Ortuño
The results of a survey about psychosocial care throughout Europe. Haemophilia : the official journal of the World Federation of Hemophilia (2023)
Lorynn Teela, Lieke E Verhagen, Hedy A van Oers, Esmée E W Kramer, Joost G Daams, Mariken P Gruppen, Maria J Santana, Martha A Grootenhuis, Lotte Haverman
Pediatric patient engagement in clinical care, research and intervention development: a scoping review. Journal of patient-reported outcomes 7 (1) (2023)
Lorynn Teela, Lieke E Verhagen, Hedy A van Oers, Esmée E W Kramer, Joost G Daams, Mariken P Gruppen, Maria J Santana, Martha A Grootenhuis, Lotte Haverman
Pediatric patient engagement in clinical care, research and intervention development: a scoping review. Journal of patient-reported outcomes 7 (1) (2023)
Lorynn Teela, Lieke E Verhagen, Hedy A van Oers, Esmée E W Kramer, Joost G Daams, Mariken P Gruppen, Maria J Santana, Martha A Grootenhuis, Lotte Haverman
Pediatric patient engagement in clinical care, research and intervention development: a scoping review. Journal of patient-reported outcomes 7 (1) (2023)
Lorynn Teela, Lieke E Verhagen, Hedy A van Oers, Esmée E W Kramer, Joost G Daams, Mariken P Gruppen, Maria J Santana, Martha A Grootenhuis, Lotte Haverman
Pediatric patient engagement in clinical care, research and intervention development: a scoping review. Journal of patient-reported outcomes 7 (1) (2023)
Shosha H M Peersmann, Michiel A J Luijten, Lotte Haverman, Caroline B Terwee, Martha A Grootenhuis, Raphaele R L van Litsenburg
Psychometric properties and CAT performance of the PROMIS pediatric sleep disturbance, sleep-related impairment, and fatigue item banks in Dutch children and adolescents. Psychological assessment 34 (9) (2022)
Christina Burgess, Petra Buckova, Karen Vandenabeele, Gaby Golan, Gloria Rooney, Ana Torres Ortuño, Lotte Haverman
Impact of COVID-19 on professionals and patients in haemophilia care - The perspective from the EAHAD Psychosocial Working Group. Haemophilia : the official journal of the World Federation of Hemophilia (2022)
Christina Burgess, Petra Buckova, Karen Vandenabeele, Gaby Golan, Gloria Rooney, Ana Torres Ortuño, Lotte Haverman
Impact of COVID-19 on professionals and patients in haemophilia care - The perspective from the EAHAD Psychosocial Working Group. Haemophilia : the official journal of the World Federation of Hemophilia 29 (1) (2022)
Christina Burgess, Petra Buckova, Karen Vandenabeele, Gaby Golan, Gloria Rooney, Ana Torres Ortuño, Lotte Haverman
Impact of COVID-19 on professionals and patients in haemophilia care - The perspective from the EAHAD Psychosocial Working Group. Haemophilia : the official journal of the World Federation of Hemophilia 29 (1) (2022)
Christina Burgess, Petra Buckova, Karen Vandenabeele, Gaby Golan, Gloria Rooney, Ana Torres Ortuño, Lotte Haverman
Impact of COVID-19 on professionals and patients in haemophilia care - The perspective from the EAHAD Psychosocial Working Group. Haemophilia : the official journal of the World Federation of Hemophilia 29 (1) (2022)
Lorynn Teela, Lieke E Verhagen, Mariken P Gruppen, Maria Jose Santana, Martha A Grootenhuis, Lotte Haverman
Including the voice of paediatric patients: Cocreation of an engagement game. Health expectations : an international journal of public participation in health care and health policy 25 (4) (2022)
Anke J Woudstra, Lieke M van den Heuvel, Elsbeth H van Vliet-Lachotzki, Wybo J Dondorp, Phillis Lakeman, Lotte Haverman, Irene M van Langen, Lidewij Henneman
Views of patients and parents of children with genetic disorders on population-based expanded carrier screening. Prenatal diagnosis 42 (9) (2022)
Samantha J Anthony, Katarina Young, Sarah J Pol, Enid K Selkirk, Tom Blydt-Hansen, Suzanne Boucher, Aviva Goldberg, Lorraine Hamiwka, Lotte Haverman, Joanna Mitchell, Simon Urschel, Maria Santana, Jennifer Stinson, Katie Sutherland, Lori J West
Patient-reported outcome measures in pediatric solid organ transplantation: Exploring stakeholder perspectives on clinical implementation through qualitative description. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 30 (5) (2021)
Maud M van Muilekom, Michiel A J Luijten, Raphaele R L van Litsenburg, Martha A Grootenhuis, Caroline B Terwee, Lotte Haverman
Psychometric properties of the Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Anger Scale in the Dutch general population. Psychological assessment (2021)
Maud M van Muilekom, Lorynn Teela, Hedy A van Oers, Johannes B van Goudoever, Martha A Grootenhuis, Lotte Haverman
Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2021)
Thirsa Conijn, Ivy van Dijke, Lotte Haverman, Phillis Lakeman, Frits A Wijburg, Lidewij Henneman
Preconception expanded carrier screening: a focus group study with relatives of mucopolysaccharidosis type III patients and the general population. Journal of community genetics 12 (3) (2021)
Maud M van Muilekom, Michiel A J Luijten, Hedy A van Oers, Thirsa Conijn, Heleen Maurice-Stam, Johannes B van Goudoever, Martha A Grootenhuis, Lotte Haverman, null null
Paediatric patients report lower health-related quality of life in daily clinical practice compared to new normative PedsQLTM data. Acta paediatrica (Oslo, Norway : 1992) 110 (7) (2021)
Erna C van Balen, Lotte Haverman, Shermarke Hassan, Elisabeth M Taal, Cees Smit, Mariëtte H E Driessens, Erik A M Beckers, Michiel Coppens, Jeroen C J Eikenboom, Hélène L Hooimeijer, Frank W G Leebeek, Lize F D van Vulpen, Saskia E M Schols, Caroline B Terwee, Frits Richard Rosendaal, Johanna van der Bom, Samantha C Gouw
Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands. Journal of thrombosis and haemostasis : JTH 19 (11) (2021)
Maud M van Muilekom, Michiel A J Luijten, Hedy A van Oers, Caroline B Terwee, Raphaële R L van Litsenburg, Leo D Roorda, Martha A Grootenhuis, Lotte Haverman
From statistics to clinics: the visual feedback of PROMIS® CATs. Journal of patient-reported outcomes 5 (1) (2021)
Isolde A R Kuijlaars, Lorynn Teela, Lize F D van Vulpen, Merel A Timmer, Michiel Coppens, Samantha C Gouw, Marjolein Peters, Marieke J H A Kruip, Marjon H Cnossen, Jelmer J Muis, Evelien S van Hoorn, Lotte Haverman, Kathelijn Fischer
Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance. Research and practice in thrombosis and haemostasis 5 (8) (2021)
Michiel A J Luijten, Maud M van Muilekom, Lorynn Teela, Tinca J C Polderman, Caroline B Terwee, Josjan Zijlmans, Leonie Klaufus, Arne Popma, Kim J Oostrom, Hedy A van Oers, Lotte Haverman
The impact of lockdown during the COVID-19 pandemic on mental and social health of children and adolescents. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 30 (10) (2021)
Michiel A J Luijten, Raphaële R L van Litsenburg, Caroline B Terwee, Martha A Grootenhuis, Lotte Haverman
Psychometric properties of the Patient-Reported Outcomes Measurement Information System (PROMIS®) pediatric item bank peer relationships in the Dutch general population. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 30 (7) (2021)
Perrine F Limperg, Heleen Maurice-Stam, Madelief R Heesterbeek, Marjolein Peters, Michiel Coppens, Marieke J H A Kruip, Jeroen Eikenboom, Martha A Grootenhuis, Lotte Haverman
Illness cognitions associated with health-related quality of life in young adult men with haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 26 (5) (2020)
Hedy A van Oers, Lorynn Teela, Sasja A Schepers, Martha A Grootenhuis, Lotte Haverman, null null
A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR). Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 30 (11) (2020)
Lorynn Teela, Maud M van Muilekom, Lieke H Kooij, Anouk W Gathier, Johannes B van Goudoever, Martha A Grootenhuis, Lotte Haverman, Hedy A van Oers
Clinicians' perspective on the implemented KLIK PROM portal in clinical practice. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 30 (11) (2020)
Perrine F Limperg, Heleen Maurice-Stam, Lotte Haverman, Michiel Coppens, Marieke J H A Kruip, Jeroen Eikenboom, Martha A Grootenhuis, Marjolein Peters
Professional functioning of young adults with congenital coagulation disorders in the Netherlands. Haemophilia : the official journal of the World Federation of Hemophilia 25 (3) (2019)