Black sickle cell patients' lives matter: healthcare, long-term shielding and psychological distress during a racialised pandemic in England - a mixed-methods study.
Maria J BerghsFrancesca HorneScott YatesSadeh GrahamRachel KempAmy WebsterCarlton HowsonPublished in: BMJ open (2022)
The adapted 36-Item Short Form Survey (SF36) version 2 (V. 2) survey indicated worse quality of life and mental health. The open-ended questions from the adapted survey also identified shielding concerns about hospital care, pain management and knowledge of sickle cell by healthcare professionals. From the interviews, it emerged that the racialised element of the pandemic caused significant psychological distress for a population group that had to regularly access hospitals. It was noted that psychological health needs both during a pandemic and outside of it were poorly understood and became invisible in services. The psychological impact of experiences of hospital care as well as growing up with an invisible chronic condition were important to understand psychologically.
Keyphrases
- healthcare
- pain management
- mental health
- sars cov
- coronavirus disease
- cross sectional
- end stage renal disease
- chronic pain
- ejection fraction
- chronic kidney disease
- newly diagnosed
- psychometric properties
- health information
- prognostic factors
- minimally invasive
- public health
- emergency department
- mental illness
- drug induced
- physical activity
- electronic health record