How Is End-of-Life Care With and Without Dementia Associated With Informal Caregivers' Outcomes?
Jannie A BoogaardJenny T van der SteenAlice H de BoerMarjolein I Broese van GroenouPublished in: The American journal of hospice & palliative care (2019)
Informal caregivers of people with dementia are at risk not only of high caregiver burden but also of missing out on positive experiences associated with caregiving at EOL. Future research should examine how dementia-related factors reduce positive caregiving experiences, in order to make palliative care a positive reality for those providing informal care to community-dwelling persons with dementia.