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Management of Adolescent-Parent Dyads' Discordance for Willingness to Participate in a Reproductive Health Clinical Trial.

Jenny K R FrancisLauren Dapena FraizAriel M de RocheMarina CatallozziCarmen Radecki BreitkopfSusan L Rosenthal
Published in: Journal of empirical research on human research ethics : JERHRE (2017)
The objective of this study is to understand the resolution of discordance between adolescent-parent dyads about participation in research. Adolescent (14-17 years) and parent dyads were recruited from NYC pediatric clinics to assess attitudes toward research participation. A subset of dyads participated in videotaped discussions about participation in a hypothetical study. Videos from dyads that held strongly discordant opinions about participation ( n = 30) were content-coded and analyzed using a thematic framework approach. Strategies used to resolve discordance included asserting authority, granting autonomy, or recognizing inaccurate assumptions using a variety of communication behaviors. Missed opportunities to enroll initially discordant dyads may be avoided by allowing time for adolescents and parents to elicit information, clarify a situation, or convince the other.
Keyphrases
  • young adults
  • physical activity
  • clinical trial
  • mental health
  • primary care
  • healthcare
  • randomized controlled trial
  • childhood cancer