Carer preparedness improved by providing a supportive educational intervention for carers of patients with high-grade glioma: RCT results.
Georgia K B HalkettElizabeth A LobbJane L PhillipsEmma McDougallJenny ClarkeRachel CampbellHaryana M DhillonKevin McGeechanHudson PeterAnne KingHelen WheelerMarina KastelanAnne LongAnna K Nowaknull nullPublished in: Journal of neuro-oncology (2023)
This intervention was effective in improving carer preparedness. However, carer distress was not reduced, potentially due to the debilitating/progressive nature of HGG and ongoing caring responsibilities. Future research must explore whether carer interventions can improve carer adjustment, self-efficacy and coping and how we support carers after bereavement. Additionally, research is needed to determine how to implement carer support into practice.