Preferences of the Public for Sharing Health Data: Discrete Choice Experiment.

Jennifer Viberg Johansson Heidi Beate Bentzen Nisha Shah Eik Haraldsdóttir Gudbjorg Andrea Jonsdottir Jane Kaye Deborah Mascalzoni Jorien Veldwijk

Published in: JMIR medical informatics (2021)

Respondents from different countries have different preferences for sharing their health data regarding the value of a review process and the reason for their new use. Offering respondents information about the use of their data and the possibility to opt out is the most preferred governance mechanism.

Keyphrases

health information
healthcare
electronic health record
public health
mental health
big data
social media
emergency department
machine learning
climate change
artificial intelligence
human health
global health