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Where are caregivers in the clinical trial? Evaluation of caregiver responsibilities in Alzheimer's disease and related dementias clinical trials.

Armando MirandaEve RubovitsRaksha MudarVania LeungMinakshi Raj
Published in: Alzheimer's & dementia : the journal of the Alzheimer's Association (2023)
Alzheimer's disease and related dementias (ADRD) clinical trial study information does not consistently include caregiver responsibilities. Caregiver responsibilities in clinical trials span communication, monitoring, and transportation. Robust information provision to caregivers could support participant recruitment and retention. Meaningfully engaging caregivers could support recruitment of diverse participants.
Keyphrases
  • clinical trial
  • palliative care
  • phase ii
  • open label
  • double blind
  • cognitive decline
  • phase iii
  • study protocol
  • health information
  • randomized controlled trial
  • placebo controlled