Supporting people with Motor Neuron Disease (MND) to make decisions about gastrostomy feeding tube placement: a survey of UK healthcare professionals' practice and beliefs.
Sean WhiteAlicia O'CathainVanessa HallidayMichael BradburnChristopher J McDermottPublished in: Amyotrophic lateral sclerosis & frontotemporal degeneration (2024)
There is variation in HCPs practice and beliefs about initiating discussions, the sharing of information and recommendations, and timing, about gastrostomy placement. The information shared varies by profession and there is evidence of sub-optimal communication between HCPs. Further research is required to understand how these findings may impact on the decision-making of pwMND about gastrostomy.