Acceptability to and Engagement With a Virtual Sickle Cell Trait Education Program (SCTaware): Single-Center Prospective Study.

Chase M Beeman Mary Ann Abrams Kristin N Zajo Joseph R Stanek Sarah H O'Brien Peter Chan Yvette Shen Ben McCorkle Latrice Johnson Deena J Chisolm Toyetta Barnard-Kirk John D Mahan Alexandra Martinez-Mendez Whitney L Phillips Susan E Creary

Published in: JMIR formative research (2022)

Our results suggest that SCTaware is acceptable and engaging to parents. While telephone education may make SCT education more accessible, these findings suggest that many parents experience significant worry about their child with SCT after these sessions. A study to evaluate SCTaware's effectiveness at closing parents' SCT knowledge gaps is ongoing.

Keyphrases

healthcare
quality improvement
randomized controlled trial
systematic review
mental health
social media
gene expression
dna methylation