Family Perceptions of Palliative Care and Communication in the Surgical Intensive Care Unit.
Kristina ParéJoanna GrudziakKyle LavinMay-Britt StenAnneka HuegerichKarl UmbleEmma TwerTrista S ReidPublished in: Journal of patient experience (2021)
Few data exist on palliative care for trauma and acute care surgery patients. This pilot study evaluated family perceptions and experiences around palliative care in a surgical intensive care unit (SICU) via mixed methods interviews conducted from February 1, 2020, to March 5, 2020, with 5 families of patients in the SICU. Families emphasized the importance of clear, honest communication, and inclusiveness in decision-making. Many interviewees were unable to recall whether goals-of-care discussions had occurred, and most lacked understanding of the patients' illnesses. This study highlights the significance of frequent communication and goals-of-care discussions in the SICU.
Keyphrases
- palliative care
- intensive care unit
- end stage renal disease
- healthcare
- ejection fraction
- newly diagnosed
- chronic kidney disease
- peritoneal dialysis
- prognostic factors
- advanced cancer
- decision making
- minimally invasive
- public health
- pain management
- mental health
- clinical trial
- chronic pain
- atrial fibrillation
- study protocol
- coronary artery bypass
- acute respiratory distress syndrome
- extracorporeal membrane oxygenation
- affordable care act