Experience of UK Latin Americans caring for a relative living with dementia: A qualitative study of family carers.
Stefanny GuerraTiffeny JamesPenny RapaportGill LivingstonPublished in: Dementia (London, England) (2022)
Familial obligation is the driver for family carers and acceptance of the illness helped despite adversities. Openness to talk about dementia with close networks was distinctive and helpful, contrasting with wider society, where greater awareness of dementia is needed. Considering the person with dementia as a child did not seem to undermine personhood and enabled maintenance of compassion. The relative with dementia was a priority. There was a lack of culturally and linguistically appropriate services, thus restricting family carers' ability to fulfil other roles, such as parental.