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Setting up a Governance Framework for Secondary Use of Routine Health Data in Nursing Homes: Development Study Using Qualitative Interviews.

Yvonne Wieland-JornaRobert A VerheijAnneke L FranckeMarit TomassenMax HoutzagerKarlijn J JolingMariska G Oosterveld-Vlug
Published in: Journal of medical Internet research (2023)
The stakeholders' views, expertise, and knowledge of other frameworks and relevant legislation serve to inform the application of governance principles to the contexts of both the nursing home sector and the Netherlands. Many different stakeholders were involved in the development of the Registry Learning from Data in Nursing Homes' governance framework and will continue to be involved. Engagement of the full range of stakeholders in an early stage of governance framework development is important to generate trust in appropriate and responsible data reuse.
Keyphrases
  • early stage
  • electronic health record
  • healthcare
  • global health
  • big data
  • systematic review
  • risk assessment
  • wastewater treatment
  • lymph node