'Intensive palliative care': a qualitative study of issues related to nurses' care of people with amyotrophic lateral sclerosis at end-of-life.
Stéphanie DaneauAnne BourbonnaisÉmilie AllardMyriam AsriDeborah UmmelElliot BolducPublished in: Palliative care and social practice (2023)
Although nurses' experiences varied among the different settings, the study identifies the pressing need for better education and, above all, more resources when caring for a person living with ALS at end-of-life. Future research should explore the experiences of other members of the healthcare team and test interventions designed to improve the quality of life and end-of-life of people living with ALS.