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Patient-reported experience measure in sickle cell disease.

Subarna ChakravortyAmy TallettCara WitwickiHarriet HayCatherine MkandawireAvanelle OgundipePatrick OjeerAntonia WhitakerJessica ThompsonStephen SizmurGanesh SathyamoorthyJohn O Warner
Published in: Archives of disease in childhood (2018)
The new surveys functioned well, with good evidence of validity, and were accessible to the SCD patient population, supporting their future use in assessing patient experience to inform service delivery and improvements in care quality.
Keyphrases
  • sickle cell disease
  • patient reported
  • healthcare
  • quality improvement
  • mental health
  • case report
  • palliative care
  • current status
  • cross sectional
  • pain management
  • affordable care act
  • chronic pain