Development of a person-centred digital platform for the long-term support of people living with an adult-onset genetic disease predisposition: a mixed-methods study protocol.
Stephanie BestAbdullah Al MahmudShivani TyagiJack C W WheelerAbdur Rahim Mohammad ForkanAlexandra LewisNadeem ShuakatRohit KaulAisha WardNilmini WickramasinghePrem Prakash JayaramanAlison H TrainerPublished in: BMJ open (2023)
This study was approved by the Peter MacCallum Human Research Ethics Committee (HREC/88892/PMCC). Results will be disseminated in academic forums, peer-reviewed publications and used to optimise clinical care.