An Environmental Scan of Parent-focused Transition Practices between Neonatal Follow-up and Children's Rehabilitation Services.
Marilyn BallantyneTaryn OravaStephanie BernardoAmy C McPhersonPaige ChurchDarcy FehlingsEyal CohenPublished in: Developmental neurorehabilitation (2019)
Purpose: Identify parent-focused transition practices for parents of children born preterm/acutely ill when transitioning from Neonatal Follow-Up Programs (NFUP) to Children's Treatment Centers or Networks (CTCN).Methods: NFUP and CTCN health-care providers participated in an online survey and qualitative interviews. Quantitative data were analyzed using descriptive statistics and qualitative data underwent conventional content analysis.Results: 60 participants (17 sites) from diverse health disciplines completed the survey, and 14 (from 11 of 17 sites) participated in a follow-up interview. Enablers to transition included knowledgeable practitioners, shared services, and family engagement; although not present across all sites. Barriers commonly reported were a lack of time, understanding of roles, and parent engagement.Conclusion: Research study findings highlight the need to improve and bridge NFUP to CTCN parent-focused transition practices. Recommendations for next actions steps include improved cross-sector communication, bridging sectors through enhanced service provision, and moving from information provision to family engagement.
Keyphrases
- healthcare
- primary care
- mental health
- young adults
- social media
- cross sectional
- electronic health record
- health information
- public health
- low birth weight
- computed tomography
- magnetic resonance imaging
- gestational age
- mass spectrometry
- big data
- magnetic resonance
- clinical practice
- preterm birth
- risk assessment
- affordable care act
- general practice