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Measuring the Impact of Patient Engagement in Health Research: An Exploratory Study Using Multiple Survey Tools.

Deborah A MarshallNitya SuryaprakashStirling BryanKaris L BarkerGail MacKeanSandra ZelinskyTamara Lynne McCarronMaria Jose SantanaPaul MoayyediDanielle C Lavallee
Published in: Journal of the Canadian Association of Gastroenterology (2023)
The three tools together provide deeper insight into the influence of PE at each research stage. Lessons learnt from this study suggest that PE can impact many aspects of research including the design, process, and approach in the context of qualitative research, increasing the patient-centeredness of the study. More comprehensive validated tools are required that work with a more diverse subject pool and in other contexts.
Keyphrases
  • case report
  • systematic review
  • cross sectional