Login / Signup

Operationalizing a patient engagement plan for health research: Sharing a codesigned planning template from a national clinical trial.

Holly EtchegaryAndrea PikeAndrea M PateyErin GionetBrian JohnstonSusan GooldVanessa FrancisJeremy GrimshawAmanda Hallnull null
Published in: Health expectations : an international journal of public participation in health care and health policy (2021)
The De-Implementing Wisely Research group is informed by a national 9-member patient partner council (PPC). The research team includes three lead patient partners who are coinvestigators on the grant that funds the program of research. Members of the council advise on all aspects of the study design and implementation. The ideas presented in this paper were informed by regular communication and planning with the PPC; specific contributions of lead patient partner authors are outlined as follows: Brian Johnston, Susan Goold and Vanessa Francis are patient partners with a wide breadth of experience in the healthcare system and health research projects. The guidance in this article draws on their lived and professional expertise. All patient partner authors contributed to the planning of the manuscript, participated in meetings to develop content and provided critical manuscript edits and comments on drafts.
Keyphrases
  • case report
  • quality improvement
  • clinical trial
  • primary care
  • randomized controlled trial
  • palliative care
  • social media
  • hiv testing
  • mass spectrometry
  • high resolution
  • open label
  • liquid chromatography