Agreement between patients and physicians on scores of inflammatory bowel disease activity and burden assessed on a telemonitoring platform.
Michela MangiaEnrica GiuffridaValeria FiginiAnna ColomboEdoardo CarliAlessandro LavagnaMarco MendolaroEnrico MorelloMaurizio CosimatoRodolfo RoccaGuido PaganaMarco DapernoPublished in: Scandinavian journal of gastroenterology (2022)
Agreement between IBD patients and physicians was substantial for disease activity and moderate for disease impact. The inclusion of disease burden scoring in telemonitoring platforms provides important information for the management of IBD patients.Study highlightsWhat IS known•Continuous response to treatments and patient-reported outcomes became an essential goal for IBD patient management.•The use of tele-monitoring and eHealth technologies allows for regular disease assessments and for managing more efficiently IBD patients; disease questionnaires and tests are key to support eHealth tools.What is new here•Agreement between IBD patients and physicians was substantial for disease activity and moderate for disease burden, while agreement among junior and senior physicians was substantial for both.•PRISM performs as well for ulcerative colitis as for Crohn's patients.•The inclusion of disease burden tests might add to eHealth platforms valuable information, complemental to disease activity questionnaires.
Keyphrases
- end stage renal disease
- disease activity
- patient reported outcomes
- chronic kidney disease
- ejection fraction
- newly diagnosed
- systemic lupus erythematosus
- primary care
- prognostic factors
- ulcerative colitis
- healthcare
- ankylosing spondylitis
- rheumatoid arthritis patients
- risk factors
- social media
- patient reported
- high throughput
- juvenile idiopathic arthritis