Development of the Warwick Axial Spondyloarthritis faTigue and Energy questionnaire (WASTEd)-a new patient-reported outcome measure.

Nathan Ashley PearsonElizabeth TuttonJane MartindaleGeorge StricklandJean ThompsonJonathan C PackhamPaul CreamerKirstie L Haywood

Published in: Rheumatology advances in practice (2022)

An active collaboration with patients and health-care professionals has supported the co-production of a potential new PROM of axSpA fatigue, underpinned by strong evidence of face and content validity. The WASTEd extends the assessment of fatigue beyond severity, highlighting the importance of symptom frequency, energy and self-management. Future research will involve psychometric evaluation, supporting item reduction, structural refinement and confirmation of PROM validity.

Keyphrases

patient reported outcomes
healthcare
end stage renal disease
sleep quality
ejection fraction
newly diagnosed
patient reported
chronic kidney disease
peritoneal dialysis
prognostic factors
psychometric properties
cross sectional
depressive symptoms
rheumatoid arthritis
climate change
risk assessment
social media