End-of-life care in rural and regional Australia: Patients', carers' and general practitioners' expectations of the role of general practice, and the degree to which they were met.
Claire E JohnsonHugh SeniorPeta McVeyVictoria TeamAngela IvesGeoffrey MitchellPublished in: Health & social care in the community (2020)
The study objective was to explore the characteristics of rural general practice which exemplify optimal end-of-life (EOL) care from the perspective of people diagnosed with cancer, their informal carers and general practitioners (GPs); and the extent to which consumers perceived that actual EOL care addressed these characteristics. Semi-structured telephone interviews were conducted with six people diagnosed with cancer, three informal carers and four GPs in rural and regional Australia. Using a social constructionist approach, thematic analysis was undertaken. Seven characteristics were perceived to be essential for optimal EOL care: (1) commitment and availability, (2) building of therapeutic relationships, (3) effective communication, (4) psychosocial support, (5) proficient symptom management, (6) care coordination and (7) recognition of the needs of carers. Most GPs consistently addressed these characteristics. Comprehensive EOL care that meets the needs of people dying with cancer is not beyond the resources of rural and regional GPs and communities.
Keyphrases
- general practice
- palliative care
- healthcare
- south africa
- quality improvement
- papillary thyroid
- mental health
- primary care
- pain management
- affordable care act
- social support
- depressive symptoms
- end stage renal disease
- squamous cell
- squamous cell carcinoma
- chronic kidney disease
- newly diagnosed
- young adults
- tyrosine kinase
- patient reported
- lymph node metastasis
- chronic pain
- peritoneal dialysis