Tracheostomy decision-making for children with medical complexity: What supports and resources do caregivers need?
Savithri NageswaranWilliam A GowerNancy M P KingShannon L GoldenPublished in: Palliative & supportive care (2022)
Caregivers' need for support and use of resources surrounding tracheostomy placement for CMC extended beyond decision-making, and included becoming knowledgeable and getting emotional/spiritual support. Healthcare providers exploring these resources with caregivers could improve the quality of TDM communication.