'We did everything we could'- a qualitative study exploring the acceptability of maternal-fetal surgery for spina bifida to parents.
Neeltje Mth CrombagAdalina SaccoBernadette StocksPhilippe De VlooJohannes L van der MerweKatie GallagherAnna Louise DavidNeil MarlowJan A DeprestPublished in: Prenatal diagnosis (2021)
Prospective parents opting for MFS were driven by their feelings of parental responsibility. They recognise the fetus as their future child and value information and care focusing on optimising the child's future health. In the small group of parents opting for TOP, MFS was felt to offer insufficient certainty of substantial improvement in quality of life and the perceived severe impact of SB drove their decision to end the pregnancy.
Keyphrases
- mental health
- healthcare
- current status
- minimally invasive
- pregnancy outcomes
- health information
- public health
- palliative care
- coronary artery bypass
- depressive symptoms
- physical activity
- preterm birth
- early onset
- social support
- birth weight
- decision making
- pain management
- social media
- surgical site infection
- coronary artery disease
- pregnant women
- affordable care act
- gestational age