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" It's Overwhelming With the Grief" A Qualitative Study of Families' Experiences When a Young Relative Dies of Sudden Cardiac Death.

Katherine S AllanKatherine L MasonJodi GarnerKatie N DaintyDirk HuyerKris CunninghamPaul DorianKrystina B Lewis
Published in: Circulation. Cardiovascular quality and outcomes (2023)
Families rely on communication with others, yet the type, formats, and timing of information received varies, which can influence families' experiences of processing the death (and its cause), their perceived risk and their decision to pursue cascade screening. These results may provide key insights for the interprofessional health care team responsible for the delivery and communication of the cause of death to families of SCD victims.
Keyphrases
  • mental health
  • healthcare
  • depressive symptoms
  • palliative care
  • social support
  • patient safety
  • decision making