Survey of Canadian Myotonic Dystrophy Patients' Access to Computer Technology.

Seth Andrew ClimansChristine PiechowiczWilma J KoopmanShannon L Venance

Published in: The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques (2017)

Patients in a Canada-wide registry of myotonic dystrophy have access to and use technology such as computers and mobile phones. These patients expressed interest in a portal that would provide them with an opportunity to network with others with myotonic dystrophy and to access information about the disease.

Keyphrases

end stage renal disease
newly diagnosed
ejection fraction
chronic kidney disease
prognostic factors
healthcare
peritoneal dialysis
machine learning
patient reported outcomes
cross sectional
social media