Prevalence of depression and anxiety, and their relationship to social support among patients and family caregivers of rare bone diseases.
Xuefeng LaiYuling JiangYue SunZhijun ZhangShengfeng WangPublished in: Orphanet journal of rare diseases (2023)
The study identified a high prevalence of depression and anxiety among RBD patients and caregivers, and pointed out the significance of social support in alleviating psychological distress. In order to provide RBD families with comprehensive assistance, the government should actively develop programs aimed at psychological aid, policy advocacy and tangible support.