Development of a New Quality of Life Measure for Duchenne Muscular Dystrophy Using Mixed Methods: The DMD-QoL.
Philip A PowellJill CarltonDonna RowenFleur ChandlerMichela GuglieriJohn E BrazierPublished in: Neurology (2021)
The DMD-QoL is a new 14-item QoL PROM for boys and men with DMD, with demonstrable content and face validity.