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IMPACT-ALS: summary of results from a European survey of people living with ALS.

Eilis ConroyBeatriz Vélez-GómezDavid O'BrienMark HeverinOrla HardimanChristopher J McDermottMiriam Galvin
Published in: Amyotrophic lateral sclerosis & frontotemporal degeneration (2023)
The European IMPACT-ALS survey has generated insights into the complex experiences of plwALS. The data provide unique patient perspectives on common symptoms, fears, functional limitations, lifestyle changes, and wishes for future therapies that will enhance patient-centric care in ALS.
Keyphrases
  • amyotrophic lateral sclerosis
  • case report
  • cross sectional
  • healthcare
  • metabolic syndrome
  • cardiovascular disease
  • palliative care
  • mental health
  • quality improvement
  • big data
  • depressive symptoms