Caring burden and coping with haemodialysis: a qualitative study with family caregivers in Sri Lanka.
Chalani LasanthikaAnn-Christin JanlövThamara AmarasekaraHelena LarssonPublished in: BMJ open (2024)
The results show that the family caregivers have a multifaceted burden. They continued caring for their family member receiving haemodialysis while making adjustments to the burdensome caregiving situation despite many constraints and suffering. Psychosocial support and financial assistance, including family counselling, are needed by family caregivers, through a community support system, to ensure endurance during their family members' illness trajectory. Advance care planning is vital to alleviate care uncertainty and to meet the care needs of patients with ESKD, particularly in resource-constrained settings.
Keyphrases
- healthcare
- advance care planning
- palliative care
- mental health
- quality improvement
- affordable care act
- peritoneal dialysis
- end stage renal disease
- pain management
- skeletal muscle
- risk factors
- depressive symptoms
- social support
- high intensity
- chronic kidney disease
- smoking cessation
- resistance training
- health insurance
- young adults
- human immunodeficiency virus