Cancer Resource and Information Support (CRIS) for Bladder Cancer Survivors and Their Caregivers: Development and Usability Testing Study.
Michael A DiefenbachAllison MarzilianoElizabeth J SiembidaThomas MistrettaHalie PfisterAndrea YacoubKelli AibelPriya PatelEmmanuel LapitanErin K TagaiMarc C SmaldoneSuzanne M MillerPublished in: JMIR formative research (2023)
CRIS, developed over the course of 18 months by integrating feedback from experts, literature reviews, and usability testing, is the first web-based software developed for bladder cancer survivors and their caregivers to help them adjust to life following cystectomy. The efficacy of CRIS in improving patients' and caregivers' quality of life is currently being evaluated in a randomized controlled trial.
Keyphrases
- palliative care
- health information
- end stage renal disease
- young adults
- spinal cord injury
- ejection fraction
- electronic health record
- childhood cancer
- systematic review
- chronic kidney disease
- healthcare
- randomized controlled trial
- prognostic factors
- papillary thyroid
- neoadjuvant chemotherapy
- lymph node
- robot assisted
- urinary tract
- radiation therapy
- social media
- data analysis