Clinical practice guidelines adherence, knowledge and awareness in rare and complex connective tissue diseases across Europe: results from the first ERN ReCONNET survey.

Rosaria TalaricoDiana MarinelloStefano BombardieriGerd-Rüdiger R BurmesterJoao FonsecaCharissa FrankIlaria GalettiEric HachullaFrederic HoussiauUlf Mueller-LadnerMatthias SchneiderVanessa SmithGiuseppe TurchettiJacob M van LaarAna VieiraMaurizio CutoloMarta Mosca

Published in: RMD open (2021)

ERN ReCONNET is addressing the main issues identified in the results of the survey, promoting practical actions for the local adaptation of CPGs across Europe, improving their routine clinical use and increasing the awareness on CPGs among rCTDs patients, family members and caregivers.

Keyphrases

end stage renal disease
newly diagnosed
cross sectional
ejection fraction
chronic kidney disease
healthcare
palliative care
prognostic factors
type diabetes
clinical practice
metabolic syndrome
patient reported outcomes
adipose tissue
glycemic control
weight loss