Patient Engagement Partnerships in Clinical Trials: Development of Patient Partner and Investigator Decision Aids.
Monica ParryAnn Kristin BjørnnesKarine Toupin-AprilAdhiyat NajamDavid WellsAditi SivakumarDawn P RichardsTina CeroniMarianne ParkAnne K EllisIan GilronSusan MarlinPublished in: The patient (2020)
Our digital patient partner and investigator decision aids are the first to provide information technology to deliver sex/gender, POR knowledge, and decision support beyond the traditional decision aids used for health screening and/or treatment decisions. The decision aids have the potential to make a significant contribution to Canada's Strategy for POR and support the collaborative efforts of patients and investigators to build a sustainable, accessible and equitable health care system.
Keyphrases
- case report
- clinical trial
- antiretroviral therapy
- decision making
- healthcare
- end stage renal disease
- mental health
- public health
- ejection fraction
- newly diagnosed
- quality improvement
- health information
- social media
- peritoneal dialysis
- randomized controlled trial
- hiv infected
- patient reported outcomes
- prognostic factors
- hepatitis c virus
- risk assessment
- combination therapy
- men who have sex with men
- phase iii