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A roadmap for early psychosocial support in palliative care for people impacted by ALS-reducing suffering, building resiliency, and setting the stage for delivering timely transdiagnostic psychosocial care.

Christina L RushEthan G LesterJames D BerryKate T BrizziElizabeth C LindenbergerJared Randall CurtisAna Maria Vranceanu
Published in: Translational behavioral medicine (2023)
This commentary describes the current state of psychosocial care for people with amyotrophic lateral sclerosis and their caregivers. We provide recommendations for developing a roadmap for future research based on existing literature and our group's clinical and research experience to inform next steps to expand evidence-based psychosocial care for people with amyotrophic lateral sclerosis and their caregivers, with potential implications for a range of advanced illnesses.
Keyphrases
  • amyotrophic lateral sclerosis
  • palliative care
  • advanced cancer
  • mental health
  • healthcare
  • quality improvement
  • systematic review
  • pain management
  • chronic pain